He also has non-epileptic seizures and foot drop, which is the inability to raise the front part of the foot due to weakness or paralysis of the muscles. It's usually caused by neurological, muscular, or anatomical problems. "And hearing loss, let's not forget the hearing loss," Crystal recalled.
AFW2 Support Adjusting
Since then, the AFW2 program has supported the Heideman's health care journey. At first, there were multiple visits to military hospitals every week to see specialists, including mental health providers, physical therapists, neurologists, and others.
The program also advocated to get Eric medically retired from the Air Force and helped with their transition to the Department of Veterans Affairs health system.
Soon after being medically retired following 20 years of service, Eric and Crystal took their recreational vehicle and began traveling the country to spend time together, managing his health care via telehealth appointments. But when Eric started developing seizures, traveling like that no longer seemed safe.
They chose to settle in Virginia so they could be close to the water and halfway between their two kids. Their son Kyle lives in Florida; and their daughter, who is expecting her first child, was living in Wisconsin.
Today, almost three years into adjusting to his retirement, Eric's care has boiled down to a daily routine. "As far as medical appointments go, they've kind of simmered down" said Crystal."
He does physical therapy every other week. He sees a neurologist several times a year. He also periodically goes to a seizure clinic and gets a brain MRI every six months.
"We have a plan, and we know what we're doing moving forward, so we don't need to see everybody as often," she said.
Still, "he talks to his therapist every week, no matter what."
His Story Is Also Hers
Crystal's role as a full-time caregiver and wife never ends. "Our stories are so much interconnected," she said. "I don't know how to separate his personal stuff from my stuff, because, well, in the long run, it was part of my story."
"Crystal is always there to make sure Eric is okay. She makes sure he takes his medication. She makes sure that he eats well and remembers to turns off the stove. She helps manage the household and his medical appointments. "I watch him losing his identity daily," she said. "And I try so hard not to allow that to happen."
Their biggest struggle, she said, has been managing the seizures, because "we don't know if we're doing everything we can to help eliminate them."
Crystal explained that Eric suffers from non-epileptic seizures, which are triggered by PTSD and anxiety and cannot be treated with medication or surgery.